Toronto General Hospital visit

Hello everyone,


It’s been awhile since I have last updated my BLOG,

So this is what’s happen, with the Toronto General Hospital visit,

I am starting to get worse getting more slow and just feel pretty lousy, we all know.

There is a product called Flolan, pretty extreme stuff we are thinking about getting involved with and a huge commitment on me and Marni life style.

Its starts by doing 2 weeks for Marni and I of training, I have to learn how to mix and care for the serum, how the pump machine works, that I would always have to use for the rest of my life there is a lot of necessary things that me and Marni would need to learn before going through this.

The process starts by putting a hick line in you all my heart area for a day (might remember this as mom had one put it for a different reason)

Then after I would be admitted to the hospital go back a few days later and have the pump machine added, I would have to stay in the hospital for about 4 days, and make sure I have no side effects with body and make sure I remember all the training I had.

Details that we where told on are, it always has to be keep cold, If I go out and I must bring my supplies with me as if something should fail, example my pump machine breaks down etc, I will have to use the back up, I can only have enough serum for a 48 period one that’s in the pump and a spare one that in the fridge, if have to go out I take it with me with me and keep in a cooler bag. I have to make sure I mix serum everyday at same time everyday because I only have a certain time frame before the drug leaves my system. I will be doing all of this after the holiday break sometime in the middle of Jan 09.
From what I and Marni understand there is a might take up to 6 months or less to see any signs of this drug doing anything to help me,
We where told it have to be slowly added to my body because of side effects.