The return of Sean's Bloggin

Hello all,

Its been a very very long while sine I have blog!.

Well first let me tell you my Christmas was alright I was sick for most of the whole week but a shinning angel (mom) made me feel very great for Christmas day and Boxing Day!

So in all I have a great time at Kristi’s and Casey’s house with Valerie and Barry,
Then it happen I notice I was feeling very sickly and was retaining a very large portion of fluid on me, at this point I just thought I was sick again because 2 weeks before this I got Briana wonderful flu bug that she had, so I just keep thinking it was that again till my nurse came and said I should go to the hospital because she was very worried about me having pneumonia, as she heard a lot of fluid in my lungs.

So that Tuesday Jan 6 Marni took me down to the emergency at TGH hospital and would you know it I was having a very bad heart failure, So the doctors told Marni and I would be admitted for aprrox 10 days well you should have seen Marni’s face, it look like she was going reach across the room and strangle the doctor for saying that, LOL but after 3 long weeks came home Jan 28, still not doing the greatest but just glad to be back home.

Still very worried I will have to back as I still gaining fluid and not losing it has my kidney’s are dehydrated and I’m not going to the washroom as I should be!

Also why I said in a lot longer is I took the plunge to start Flolan so I had about 1 week and half of training to learn how too mix and care for the needles and all the other supplies, Marni also had to learn.

Briana was so happy too see me home and I was glad to see her bright blue eyes and her wonderful smile! On very sad note the doctors have told me and Marni I shouldn’t be left alone with her anymore which is very hard to hear but it is the truth as I have a HICKMAN line in my chest and if something ever happen Briana would be stranded, so I see there point, just more work for Marni, sometimes I just don’t know how she does it all I LOVE HER SO MUCH I just wish I could give her something!!

Anyways I’ll keep you all in touch
Sean

Toronto General Hospital visit

Hello everyone,


It’s been awhile since I have last updated my BLOG,

So this is what’s happen, with the Toronto General Hospital visit,

I am starting to get worse getting more slow and just feel pretty lousy, we all know.

There is a product called Flolan, pretty extreme stuff we are thinking about getting involved with and a huge commitment on me and Marni life style.

Its starts by doing 2 weeks for Marni and I of training, I have to learn how to mix and care for the serum, how the pump machine works, that I would always have to use for the rest of my life there is a lot of necessary things that me and Marni would need to learn before going through this.

The process starts by putting a hick line in you all my heart area for a day (might remember this as mom had one put it for a different reason)

Then after I would be admitted to the hospital go back a few days later and have the pump machine added, I would have to stay in the hospital for about 4 days, and make sure I have no side effects with body and make sure I remember all the training I had.

Details that we where told on are, it always has to be keep cold, If I go out and I must bring my supplies with me as if something should fail, example my pump machine breaks down etc, I will have to use the back up, I can only have enough serum for a 48 period one that’s in the pump and a spare one that in the fridge, if have to go out I take it with me with me and keep in a cooler bag. I have to make sure I mix serum everyday at same time everyday because I only have a certain time frame before the drug leaves my system. I will be doing all of this after the holiday break sometime in the middle of Jan 09.
From what I and Marni understand there is a might take up to 6 months or less to see any signs of this drug doing anything to help me,
We where told it have to be slowly added to my body because of side effects.

3 week till Christmas oh how sad it will be!

Hello all,

So it’s been a longtime since I last wrote a blog,
Nothing much happing really, Briana came home last Thursday with the flu bug and she was really sick, she slept on Sun, from 12:30pm till 7:00pm with out moving, she was in our room because she like’s watching the TV when she can but she was really out of it.

Never seen Briana loses her spark that happen this time.

Then I got the flu from Briana on Tues. and still somewhat have it I feel lousy and just plain old tired, but I’m trying to get better by eating food and drinking plenty of water and juice.

Well I now already for Christmas got all the presents bought now just to warp them up, It’s been a very wired feeling I have had lately, I know my mom gone I starting to get a little upset with out having her around, it was her favorite time of the year and I am coming now to the relation that I won’t see my mom for any major holidays which is like my birthday and so on, a lot of my other family is far away and just around the corner to visit.

This year was my mom Christmas year we where to go to her house for gifts and supper so instead we are going to go to my wife sister for supper it won’t be the same, but I’ll be with people that love me and try and keep my mind off my mom with her not around.

Oh how I will miss the fun times we had with my mom at Christmas there was so many wonderful bake goods and supper, I LOVE her home made stuffing what a treat that was when we got her to make it, the one thing I loved about one of my mom’s rules was there was NO TV aloud on Christmas Day at all and her reasons was since we all had new toys games and could play and talk with each other it was a good rule but she starting to let it go once we grew up well I know times fly’s, but this year I think its going to stand still for a moment for me when I get up on Christmas day and go and try to phone my mom or wait for that phone to ring and her voice on the other end so instead of doing that I’ll hold my head up high and look up to the sky and wish her a very merry Christmas and just hope for a moment I get a replay back LOVE YOU MOM MISS YOU !!!.

Photography Making Me Happy!!

Hello All,

Well we got a lot of snow up here right now,
Thank goodness it’s has not been too bad, we only been really hit hard the one time which was last Sunday, when my Aunt Debby, Uncle George, Shannon and Ryan came to visit

I become interested in photography starting using a Canon G9, I am really starting to enjoy some of the pictures I been taking it’s the first time I have felt inspired since the lost of my mom maybe she helping me along the way!!!, I joined a few photography forums and posted some pictures of Briana and sunsets and other pictures and have won 4-5 contests, no money involved just getting my photo’s saying there are done very well and coming in first place over about 5-10 photographers.

I’m hoping to upload them to a website for everyone to see, soon so come back soon and I’ll post a link to the website soon as I get it finished.

Take care
Sean
Here a few I taken I been using a Canon G9

Barrie The SNOWY WINTERLAND

Hello all,

It’s been a while since my last update, I must say not too much to report which is great new, expect the BIG snowfall oh yeah the gas stove broke AGAIN so Marni and I just got fed up with it and we went out and got a new stove this time electric for get gas anymore.

I had too wake up this morning, I had Briana for the past couple of days Marni’s been busy with work I had to get up today at 6:30am because Marni had layout at her work.

My Aunt Debby, Uncle George, Shannon and Ryan came up for a visit; we had a really great time visiting them, Debby make homemade chili for us to eat for lunch.

Marni came home and took Briana out to play in the snow here’s some pictures
I mean there a lot of snow! Bye Sean

What the Heck Winter To Summer in 10 days YEAH!

Hello everyone,

Well from SNOW to summer all in about 10 days I’ll take it, wouldn’t you but don't hold out too much longer to get the shovel and snow blowers ready LOL?

The weather these past few days are outranges, I love it so hot for
Nov 6.

This is wonderful, Briana and Marni where home yesterday Wednesday Nov 5, pretty much Briana and Marni spent the whole day outside in this summer like weather I also managed to get outside and enjoy it.

Marni main task was to rank the leaves up in the front and backyard,
Briana has learned from preschool to jump in the leaves, so has Marni rank them up Briana would jump in them, very cute here some pictures, going to post on facebook today as I have a lot I forgot how many have a look!.

I have been busy just trying to figure out something, Can’t deicide if I won’t to draw or do websites I think websites I will be posting homemade templates that are done in flash so people can purchase them online, also thinking of doing it for low budget companies that would like a flash website or HTML, Now all I have to do is keep motivated towards this instead of thinking about and just doing it will let you know how it goes.
Other then this nothing much happening
Take care Sean,

Introducing the elegant princess Briana

Hello All,

Well Briana had so much fun on Halloween she was such a good little princes,
Marni took her back over to are old neighborhood, everyone was so glad to see Briana.

In the meantime I and Dee gave out the candy what a drag that was we only 20 kids and Marni had bought enough for 100 kids LOL, so to say we have candy left over is about right.

Other then that we close up shop around 8:30 no one was around.

Now its time to start packing up the Halloween stuff and sort through the ton and tons of Christmas decorations we have from my mom’s house, that will be very sad and hard this year.

Seeing my entire mom’s stuff in our house and no mom to enjoy it with, there will be a lots of tears this year but we will make it thorough it.

I feel sad though because Briana had so much fun with Halloween and now Christmas is coming, she understand it now and when my mom was alive she was just a year old and didn’t get it, my mom never go to see the excitement in Briana face as she going to have this for this year.

Anyways hope all is well
Sean